MyWise preview

No. MyWise is a read-only preview. It accepts no health entries or photos, stores no patient record and sends no reminders. Use downloadable blank forms offline and keep completed copies securely.

Include your epilepsy description, current medicines, allergies, emergency contacts, doctor, pharmacy, next review and relevant care-plan dates.

Personal account storage is not active. Use the printable resources privately with your care team. The dashboard remains a preview and does not collect your health record.

The current MyWise page shows a planned layout only. You cannot enter fictional or real details, upload medicine photos, record a seizure, save appointments or set reminders. It does not store a patient health record.

Download a blank seizure diary, medicine schedule or appointment worksheet for offline use. Completed copies stay under your control and are not uploaded by these tools.

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Use a stable name for each event pattern, then describe what actually happened: warning, responsiveness, movements, duration and recovery. Mark uncertain times as approximate.

Compare your record with a witness when possible. Your clinician interprets the pattern; an event count alone cannot determine seizure type or treatment.

Copy name, strength, formulation, prescribed dose and times from current labels. Date the list and record which prescriber or pharmacist confirmed it. A photograph can help identify a package but does not replace the actual prescription.

Keep discontinued medicines clearly separate. Ask the pharmacist to reconcile discrepancies before anyone changes treatment.

Use your usual calendar and pharmacy arrangements for actual reminders. A printable schedule does not send alerts, and a saved calendar event only works after it has been imported and notifications are enabled.

Plan a refill margin and check the next appointment before the supply runs low. Keep a backup if your phone is lost or out of battery.

Give a clinician a concise relevant summary rather than an unfiltered collection. Share only with people you choose, and remove information that another person does not need.

A document you save can remain on a shared phone or computer. Use a private device, secure account and careful storage. Do not post identifiable plans in a public group.

Secure accounts, durable records, caregiver permissions and reliable reminders need further implementation and testing. They are not activated by visiting this page.

Until then, use the downloadable blank worksheets and your existing clinical team for real care coordination.

Ask what help is wanted and what feels intrusive. Discuss who can know about epilepsy, who may receive medical information and who should be contacted after an event. Preferences may change after a new diagnosis, a change in seizures or a move away from home.

Separate three tasks: helping with an immediate seizure, providing practical support afterwards and making ongoing decisions. Being an emergency contact does not automatically authorise someone to make every health or financial decision. Ask the relevant professional about formal authority when it is needed.

• Use a small trusted contact list with a first contact and backup. Confirm the contacts agree to their roles.
• Write the person’s preferred words for explaining a seizure to others.
• Share only the information each person needs. Keep a complete plan securely and a concise response sheet where agreed.

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Arrange a clinician-approved seizure action plan, and make sure carers can recognise the person’s usual event and the escalation instructions. Reading a sheet once is not the same as practising what to do. If rescue medication is prescribed, training must cover the specific medicine, route, prescribed dose, timing, safety and emergency escalation.

• Ask each supporter to explain the plan back in their own words. Clarify uncertainty with the treating team.
• Rehearse a calm scenario: who times the seizure, who protects the person, who retrieves the plan and who calls for help.
• Check the plan is available at home, school, work or respite where needed and with consent.
• Check storage, expiry dates and access to any prescribed rescue medication. Do not share or improvise medicines.

A handover is a short factual update for the next person helping. Include what happened, how long it lasted, what was done and what still needs follow-up. Avoid assumptions about causes or criticism of the person.

After recovery, ask what the person needs: privacy, a familiar contact, practical help or clinician advice. Use the agreed plan for supervision and escalation rather than inventing a universal recovery rule.

• Document event time, observed features, injury, recovery and medication given under the authorised plan.
• Record who was notified, who has taken over support and any medical advice received.
• If an episode differs from the usual pattern, flag the difference clearly to the treating team.
• Update the plan after clinician review; remove old copies so carers do not follow conflicting instructions.

Carer Gateway offers free support services for eligible unpaid carers, including access to counselling, coaching, peer support and respite arrangements. Call 1800 422 737 to discuss available support. General contact hours are Monday to Friday 8 am–5 pm; the service states emergency respite can be requested at any time. If someone is in immediate danger, call 000.

• Plan breaks before exhaustion becomes a crisis. Identify who could provide a safe handover if the main supporter becomes ill.
• Keep the supporter’s own appointments, sleep, work and social connection in the plan.
• Discuss financial pressures separately from care tasks. Carer Payment and Carer Allowance have their own assessments; a medical report alone does not make a claim.
• Ask for help with the specific problem: overnight disruption, no backup, difficulty understanding a plan or balancing employment and care.

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Ask providers how they train workers for an individual’s epilepsy plan and how they record events and contact the treating team. NDIS registration can be checked on the Commission’s register, but specific skills and availability still require discussion.

• Who provides seizure first-aid training and checks competency?
• Who is authorised and trained to give prescribed rescue medication, where relevant?
• How are absences, worker changes and overnight support handled?
• What are the privacy, incident-reporting and complaints processes?
• Who can you contact if a support is unsafe or does not arrive? The NDIS Commission accepts complaints about provider or worker concerns.

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Confirm the working diagnosis, goals, medicine decisions, monitoring, safety advice, review date and contact route. Give the person an accessible summary and clarify which clinician will complete each action.

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Write your three main priorities before the appointment: understanding the diagnosis, improving control, managing a side effect or making a life decision. Mention urgent changes when booking so the clinic can triage appropriately.

Do not wait for a routine appointment for a seizure emergency or a serious medicine reaction.

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Describe what happens before, during and after each type of event, the age it began, frequency, injuries and recovery. Include the last event date and whether the pattern is changing.

If a witness can attend with consent, ask them to describe observations in their own words. A safely recorded video can be helpful, but filming must never delay first aid or compromise privacy.

Bring medicine names, formulations, doses and times from labels; record past medicines and why each stopped. Include supplements, contraception, allergies and other diagnoses.

Explain practical barriers such as supply, swallowing, cost, shift work or adverse effects. These are care problems to solve together. Do not change doses while preparing for the visit.

Ask what supports the diagnosis and whether there are alternatives. Clarify your seizure type or syndrome if known. Ask what the EEG, scan or other test can and cannot show, and how results will reach you.

If seizures continue, ask whether diagnosis, medicine suitability, adherence and further specialist assessment need review before another treatment is added.

Repeat the plan back in your own words. Ask for a written schedule if treatment changes. Confirm what to do after a missed dose, vomiting, an adverse effect or another seizure.

Clarify first aid, rescue treatment if prescribed, driving, pregnancy plans and any work or water precautions that apply to you. Ask who answers questions between appointments.

Before leaving, check test bookings, referral requirements, prescription supply and the date or trigger for review. Keep copies of letters and the current action plan together.

If you cannot follow the plan because of cost, availability or transport, contact the clinic rather than silently delaying treatment.