Patient Resources

The largest US epilepsy organisation. Offers a 24/7 helpline, peer support network, local chapter events, and an extensive online community forum for patients and caregivers.

Australia's leading epilepsy support organisation. Provides a national helpline, peer support groups, employment support, and resources for people living with epilepsy across Australia.

National peak body for epilepsy in Australia. Coordinates peer support groups for families, young people, and adults, and advocates for improved epilepsy services nationwide.

The UK's leading epilepsy charity. Provides a free confidential helpline, online support groups, and a comprehensive library of patient information leaflets and guides.

The UK's only medical charity for epilepsy. Runs a specialist helpline staffed by epilepsy nurses, offers mental health support resources, and conducts world-leading research.

National support organisation for New Zealanders living with epilepsy. Provides information, advocacy, and support services including a national helpline.

The world's preeminent organisation for epilepsy professionals and patients. Provides patient care resources, mental health guidance, diagnostic tools, and educational videos in multiple languages.

A US-based organisation dedicated to funding epilepsy research. Offers patient forums, medication access resources, and information on clinical trials.

National peak body for epilepsy in Australia. Coordinates peer support groups for families, young people, and adults, and advocates for improved epilepsy services nationwide. Also a registered NDIS provider.

Australian charity funding research into brain and neurological conditions including epilepsy. Provides patient information and supports neurological research.

Free on-demand training modules on epilepsy, seizure recognition, first aid, and medication management. Suitable for patients, caregivers, teachers, and healthcare workers.

Comprehensive library of downloadable toolkits, seizure action plan templates, school forms, and patient education materials.

The international standard for epilepsy classification and diagnosis. Useful for patients wanting to understand their diagnosis and the terminology used by their neurologist.

UK national clinical guidelines for epilepsy diagnosis and management. Includes patient decision aids and information on antiepileptic drug selection.

Plain-language information sheets on all major antiepileptic drugs including levetiracetam — covering how they work, side effects, and what to discuss with your doctor.

Patient community discussion on levetiracetam experiences at Mayo Clinic Connect — a moderated forum where patients share real-world experiences.

Dedicated resource on the intersection of epilepsy and mental health — covering depression, anxiety, psychosis, and the neuropsychiatric effects of antiepileptic drugs including levetiracetam.

Four key support resources for epilepsy and mental health, including wellness toolkits, chronic disease self-management programmes, and crisis support.

International resources for clinicians and patients addressing mental health comorbidities in epilepsy, including videos and helpful links.

Australia's leading mental health organisation. If levetiracetam is affecting your mood, anxiety, or mental health, Beyond Blue provides free support, resources, and a 24/7 helpline.

UK mental health charity. Provides information and support for people experiencing depression, anxiety, or other mental health challenges — including those caused by medication.

US-based mental health advocacy organisation with screening tools, crisis resources, and information on depression and anxiety — relevant for patients experiencing neuropsychiatric side effects.